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Sorry we haven't done any updates. Tried to on my phone last night, but I didn't have service. Also I was REALLY not doing so great once I started feeling the pain more. Surgery went well. They went higher than originally planned because my disease had started spreading. A high trans-femoral, so now when I get my prosthetic limb, I will have to use the...
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legman:
I hope you're doing ok! :)
littlejohn22:
i hope you are doing ok, i wish you a great upcoming 2015
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This coming Monday I am having surgery to have my left leg removed. I will be having a transfemoral done which is one of the hardest to recover from. My insurance is refusing to pay for many of my treatments, mobility devices and physical therapy afterwards. We have a fundraiser going until September 25th at midnight, so 6 days from now. PLEASE help me by...
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legman:
I hope everything will be ok!smilesmile
scoli:
Be strong! Wishing you the best and spreading the word
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Hey everyone, thank you for sharing my fund pages and for the support!
We have 16 days left for the online fundraiser. Sitting at 16% of the goal met.
Please keep sharing my fund page and help me get more donations! Every bit
helps, every new person seeing this is one more person aware of CRPS.
Share with everyone you know, re-post on your pages,...
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legman:
kisskiss

your doggies are so cuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuute!!!biggrinbiggrinbiggrinbiggrinbiggrinbiggrinbiggrinbiggrin
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It has been a long time since I've posted and updated on here. So many life changes and battles that have been faced over the last year. To make a very long story short, my CRPS flared back up and many of you may remember the fundraiser we did in 2011 to help me undergo the treatments that my insurance would not cover. Well, I...
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ferkixlll:
Jumped over from Kay.
Drastic as it is I'll hope that amputation works for you.
My kid sister and a friend of mine both deal with
fibromyalgia.
Stay strong.
aristophanes:
In New Mexico there is a charity that buys/lends items like crutches and wheelchairs for sick people who need them. When my dad got his hip replacement they lent him a walker and some kind of grabbing-stick (since bending was hard to do.) There might be something similar in your area -- I think it was Hospice of New Mexico.

I'm not sure where you live but there's a good chance there is something similar in your area, if you're in the US (which I assume you are.)
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Life has been rough. Sorry for lack of updates. Fundraiser was awesome and thank you all for donating. The trials for the research fell through. Raised a grand total of $650, which was stolen from someone I trusted. I personally want to apologize for their actions even though it wasn't my doing. I have been pursuing a court case against the person that decided to...
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dierdre:
HOLY GOD. If i had a little more slush in my account, i would throw a few grand your way.

My dad once told me "You have to have the bad times before the good." This was when i was vomiting blood and my loans were canceling and we owed 30k upfront. Definitely an uphill battle, but it'll happen. <3
ryker:
ah babe sorry to hear about this. makes me sick to my stomach puke
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Another message of desperation. Recently my hand/arm was injured after falling in SF after my doc appointment, so now it's all flared up. I have one week till I have to get all the money together to turn in for the trials. Please help if you can and for those that already have, I cannot thank you enough for the generosity and love you have...
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legman:
good luck!smilesmile

(i donated a little $$ earlier this week).
legman:
I hope you're doing ok!!smilesmile
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Hello everyone! Thank you ALL so much for your love and support! I cannot believe how much you all have helped over the last couple weeks. Anyway, here's an update so far. So Wednesday I had an appointment at Stanford. Everything went good. They were once again all shocked at the sight of my leg because it has gotten so bad. This next week I...
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1sailor:
I really hope that you can get over this.
legman:
I hope you'll be ok!!smilesmilesmilesmile
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I have Complex Regional Pain Syndrome, a chronic and very painful disease of the nerve involving central and peripheral nervous systems. For over 23 years, I have been living with severe dibilitating pain, in and out of wheelchairs and crutches, in and out of hospitals, etc. Undergoing many procedures & surgeries on top of being on nearly 400 different kinds of medications to battle my...
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snottlebocket:
Best of luck to you, I hope you get into the trial.
1sailor:
You are a tough, beautiful girl.
I hope you get better quickly.
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Going in for surgery in less than 20 hours. Full blown spinal surgery. What the fuck?!! See you all on the other side.
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noel:
Best wishes Committedkiss
noel:
P.S ... Happy Birthday wink kisssmile
1
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ron4164:
biggrin Wow!
xxhatchetfacexx:
Long time! Don't know if you remember me? Lovely and amazing pictures as always! I hope you're well!

J
skull
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finch:
yep. you're still just as swoon-worthy as you were when i met you in boston years ago. love
noel:
Awesome biggrin
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finch:
those pictures are fantastic. the make me kindof jealous wink kiss
finch:
blush you shouldn't say such things to me. they make me want to visit portland wink