Well I guess I should update...
Life has been throwing me for some major loops...
My family has started a fund in my name to help support my
Reflex Sympathetic Dystrophy research and medical treatments.
For all of you out there that do not know what RSDS is, here's a brief explanation.
Reflex Sympathetic Dystrophy Syndrome is characterized by severe pain. It is a progressive disease of the Autonomic Nervous System that can follow a simple trauma (fall or sprain) a break or fracture (especially wrist and ankle) a sharp force injury (such as a knife or bullet wound), heart problems, infections, surgery, RSI/CTS, spinal injuries/disorders, or major trauma.
It is a multi-symptom condition affecting one, two, or sometimes even all four of the extremities. It can also be in the face, shoulders, back, eyes, and other areas as well. RSDS is an involvement of nerves, skin, muscles, blood vessels (causing constriction and pain) as well as bones.
Symptoms of RSD:
severe burning pain (described as burning pain as if a red hot poker were inserted into the affected area, also throbbing, aching stabbing, sharp, tingling, and/or crushing in the affected area (this is not always the site of the trauma). The affected area is usually hot or cold to the touch. The pain will be more severe than expected for the type of injury sustained).
pathological changes in bone and skin (lack of hair growth, brittle skin and nails, disintegrating bones)
excessive sweating
tissue swelling
extreme sensitivity to touch
spasms-in blood vessels and muscles of affected areas
Insomnia and/or emotional disturbance
RSDS is ranked as the most painful form of Chronic Pain that exists today!
So...yes...this 23 year old girl that you see in those pictures and who writes the most random funny shit...and who doesn't look so sick she is usually in bed...has had RSDS since she was 6 years old...
What can you do to help?
Support RSDS as much as you can...get involved!!
DONATE DONATE DONATE!!!!
We are trying to put together some walk-a-thons/5k/10k runs to raise money plus hopefully some benefit concerts in the near future.
Have any ideas, email me and I will tell you what you can do to help!!
Please visit these websites to find out more about RSDS!!
http://www.rsdhope.com
http://www.rsds.org
Thank you all so much again!!
Much love!!
Life has been throwing me for some major loops...
My family has started a fund in my name to help support my
Reflex Sympathetic Dystrophy research and medical treatments.
For all of you out there that do not know what RSDS is, here's a brief explanation.
Reflex Sympathetic Dystrophy Syndrome is characterized by severe pain. It is a progressive disease of the Autonomic Nervous System that can follow a simple trauma (fall or sprain) a break or fracture (especially wrist and ankle) a sharp force injury (such as a knife or bullet wound), heart problems, infections, surgery, RSI/CTS, spinal injuries/disorders, or major trauma.
It is a multi-symptom condition affecting one, two, or sometimes even all four of the extremities. It can also be in the face, shoulders, back, eyes, and other areas as well. RSDS is an involvement of nerves, skin, muscles, blood vessels (causing constriction and pain) as well as bones.
Symptoms of RSD:
severe burning pain (described as burning pain as if a red hot poker were inserted into the affected area, also throbbing, aching stabbing, sharp, tingling, and/or crushing in the affected area (this is not always the site of the trauma). The affected area is usually hot or cold to the touch. The pain will be more severe than expected for the type of injury sustained).
pathological changes in bone and skin (lack of hair growth, brittle skin and nails, disintegrating bones)
excessive sweating
tissue swelling
extreme sensitivity to touch
spasms-in blood vessels and muscles of affected areas
Insomnia and/or emotional disturbance
RSDS is ranked as the most painful form of Chronic Pain that exists today!
So...yes...this 23 year old girl that you see in those pictures and who writes the most random funny shit...and who doesn't look so sick she is usually in bed...has had RSDS since she was 6 years old...
What can you do to help?
Support RSDS as much as you can...get involved!!
DONATE DONATE DONATE!!!!
We are trying to put together some walk-a-thons/5k/10k runs to raise money plus hopefully some benefit concerts in the near future.
Have any ideas, email me and I will tell you what you can do to help!!
Please visit these websites to find out more about RSDS!!
http://www.rsdhope.com
http://www.rsds.org
Thank you all so much again!!
Much love!!
VIEW 6 of 6 COMMENTS
smootches
My new superhero LIBBY Suicide!!
P.S. thanks for the address as well it's gonna be a big help and make it easier to donate...i talked about you and your situation for roughly a drunken half hour lastnight at the bar with my friend Katie!! eeeeek! alot of people have never heard about rsds and i'm tellin em. luvs!!!!
Courtney