i am so sick of trying to explain to people that I am a very sick person. I have RA and fybro and my entire spine is fused. I have NO energy. ever. and on top of that I am dealing with trying to get off of my pain meds because I am dependent on them and get withdrawls a lot when I run out. that in itself is awful not to mention all the pain i feel being off opiates. I found this comment in one of the groups and it made me smile because I think its a really good analogy of how i always feel, except instead of spoons, its pills with me. I try to conserve my stash but I just dont get enough in a month to control my pain, i used to but my tolerance went way up and my meds stayed the same. fun stuff. anyways just felt like posting this.


Someone I know tells a great story of how she came to understand what it's like to suffer from a condition that leaves you tired. It's all about spoons.

She was out with her friend for the first time in ages sitting in a cafe.

To explain why she'd had to keep cancelling on my friend, the lady grabbed a handful of teaspoons and gave them to my friend.
"Right, you wake up and get out of bed, that's one spoon," she said, taking back a spoon. "Shower, that's another spoon. Breakfast and getting dressed, two more." She carried on, taking a spoon for each task or job. Then, they'd reached lunchtime and there was only three spoons left. "So, you have to choose: eat lunch, travel home, eat dinner, wash up and do some laundry, which three do you do. Today was a good day, tomorrow you may only start with 4 spoons."

Since then, saying "I'm low on spoons today" and variations on that covers a lot of ground

i am so sick of trying to explain to people that I am a very sick person. I have RA and fybro and my entire spine is fused. I have NO energy. ever. and on top of that I am dealing with trying to get off of my pain meds because I am dependent on them and get withdrawls a lot when I run out. that in itself is awful not to mention all the pain i feel being off opiates. I found this comment in one of the groups and it made me smile because I think its a really good analogy of how i always feel, except instead of spoons, its pills with me. I try to conserve my stash but I just dont get enough in a month to control my pain, i used to but my tolerance went way up and my meds stayed the same. fun stuff. anyways just felt like posting this.


Someone I know tells a great story of how she came to understand what it's like to suffer from a condition that leaves you tired. It's all about spoons.

She was out with her friend for the first time in ages sitting in a cafe.

To explain why she'd had to keep cancelling on my friend, the lady grabbed a handful of teaspoons and gave them to my friend.
"Right, you wake up and get out of bed, that's one spoon," she said, taking back a spoon. "Shower, that's another spoon. Breakfast and getting dressed, two more." She carried on, taking a spoon for each task or job. Then, they'd reached lunchtime and there was only three spoons left. "So, you have to choose: eat lunch, travel home, eat dinner, wash up and do some laundry, which three do you do. Today was a good day, tomorrow you may only start with 4 spoons."

Since then, saying "I'm low on spoons today" and variations on that covers a lot of ground