Jen's pacemaker is in and apparently working, but she is in pain from fibromyalgia. I just don't know what to do at this point, I can't stand the fact that she is in pain. It is no way to live, and it has been hard on both of us. he has not lived with me for more than 4 months. She is my best friend...
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kay:
You guys doin okay?
kay:
And still those voices call from far away... 
Still a social pariah, made a mistake that cost me a friend, but my life has been a clusterfuk these past few weeks, and I have had more than one breakdown. On the fantastic side, Jen had her surgery on
Monday, and now she feels so much better!!! A lot of her symptoms are going away and she is eating and keeping food down. Her...
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Monday, and now she feels so much better!!! A lot of her symptoms are going away and she is eating and keeping food down. Her...
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dcruz:
I'm happy to hear she's doing better now ! And don't worry, life happens to everyone, real friends stick around no matter what !
twodragons:
Merry merry!
All of a sudden i seem to be a social pariah, no one seems to be messaging me any more, no letters from penpals, nothing. WTF people, i am going through a rough time and not getting much support.
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laceyk:
I blame the holidays, it gets really quiet around here in November and December
twodragons:
How did the surgery go?
For those of you who know what is going on with Jen, she should be receiving a three wire pacemaker within the next 4 to 6 weeks. It is day surgery, but she has never responded well to being anesthetized. Her heart actually stopped during her breast reduction surgery about 10 years ago. We are still trying to get her a hospital bed, but they...
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Finally a bit of good news, Jen's blood pressure is up a bit and that is a good thing. She also lost 10 pounds in water, but she still has about 15 to go, her legs and feet were so swollen she looked like a cabbage patch kid. Today's appointment was all about a pacemaker/defibrillator. The surgeon wants to implant a three wire pacemaker, it...
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bringyouhell:
I'm happy to see some good news for you! I wrote you a little card the other day, it should be there any time now.
perr:
<3 
I don't know how many, if any, of you are following me, but as you may know, I took care of my mother in the last 2 months of her life. I had quit my job so I could be there for her everyday, but she died on December 4, 2004. Again as you may or not know, Jen has a bad case of congestive...
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perr:
I don't think we ever really expect things like this. Jen is very lucky to have you, and you her. Love is such a strong, yet fragile thing...you have put it on its proper pedestal and you are doing everything in your power to help, love, and care for her. You should be praised immensely for that, and beyond that, the fact hat you can still interact with us, and even give care and love to others (me included). You are wonderful beyond belief and I am praying for both of you in my own way every single day, this you know. <3
I, too, cared for my Mother, for about 3 months, when she was diagnosed with stage 4 lung cancer last year. There was very little hope. It was and continues to be, the single most difficult thing I live with every day of my life. It has changed me. I understand what that is like, love, I do. I lost my job as well, at ProActiv, for missing so much work to care for her. Still don't have a job. Her death has affected me in so many ways, it is just mindblowing to think about. I would do anything, anything, to have her back.
Love you.
I, too, cared for my Mother, for about 3 months, when she was diagnosed with stage 4 lung cancer last year. There was very little hope. It was and continues to be, the single most difficult thing I live with every day of my life. It has changed me. I understand what that is like, love, I do. I lost my job as well, at ProActiv, for missing so much work to care for her. Still don't have a job. Her death has affected me in so many ways, it is just mindblowing to think about. I would do anything, anything, to have her back.
Love you.
dcruz:
I can only imagine. I have never had to deal with death yet and hopefully won't have to for a long time, nor have I ever been truly in love but I am sure losing a loved one, let alone a soulmate, is really hard. I really hope she makes it through, it's so rare to find someone with whom to share a deep connection.
Well, another exciting day at the Royal Victoria Hospital, insert sarcasm here. Now this shit is getting very real and I am so scared that something horrible is going to happen. Newest update: implant a pacemaker/defibrillator as soon as possible, tests to see how her system reacts to and absorbs the anti-rejection drugs used after transplants. Now we are looking at a heart transplant, major...
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perr:
Sweetheart, I have a very strong feeling that this is going to go very well. And I'm not just saying that. You are so strong and you will make it through this...both of you will.
<3
<3
Well, this is going to be a bit of a catch-up blog. Jen went into cardiac intensive care last Tuesday, and she got out today. We now have a timeline of what is going to happen. In November, she is going to have an internal defibrillator implanted, it is very similar to a pacemaker, but jump starts the heart if it stops. If that does...
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tovi:
Sounds like you two have been through quite a few trials. I hope the new c-pap machine helps her out. Hugs to both of you!
perr:
A good family friend of mine uses a Cpap and had wonderful results with it. Seems a little bit a pain in the ass to wear while you're trying to sleep, but I suppose it's better than the alternative.
I am so so sorry you're having such a hard time, my sweetest friend. And I'm sorry I didn't answer last night, check your messages. <3
I can definitely understand why you would be pissed about her withholding from you. I think right now, there is just SO much going on, that she wants the least amount of "pain-in-the-ass" that she can. You are both going through hell and back. You need to stick together. The tension is really only going to make things worse. I think maybe trying to be more forgiving with her would settle your anxiety a lot, sweetheart. Trying to adopt a more practical and open mind about what is happening with her...she is changing as a person...so are you. Very trying times, and anger is only going to complicate a deep, lasting love that needs to be stronger than ever right now.
Lots and lots of love, you.
I am so so sorry you're having such a hard time, my sweetest friend. And I'm sorry I didn't answer last night, check your messages.
<3
I can definitely understand why you would be pissed about her withholding from you. I think right now, there is just SO much going on, that she wants the least amount of "pain-in-the-ass" that she can. You are both going through hell and back. You need to stick together. The tension is really only going to make things worse. I think maybe trying to be more forgiving with her would settle your anxiety a lot, sweetheart. Trying to adopt a more practical and open mind about what is happening with her...she is changing as a person...so are you. Very trying times, and anger is only going to complicate a deep, lasting love that needs to be stronger than ever right now.
Lots and lots of love, you.
I have had a really bad day, Jen is tired and weak and she is starting to be a bit of a pain in my ass. I know that it is because she is tired, weak and frustrated. Social services is going to give her a hospital bed so she can sleep with her head elevated (insert memories of my mother here). She has thrown...
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laceyk:
I am sorry to hear what you are going trhough. Being the caretaker can be exhausting.
There is a caretakers group on here as well, that could help.
There is a caretakers group on here as well, that could help.
kittykatznme:
Thank you, I will look for that group, I posted something in couples.
Here is the latest about Jen, and it is not good. For the past week or so, she has been very weak, only being able to do the stairs once a day, and that takes all of her energy. She saw her gastroenterologist yesterday and now she is on a stronger anti-nausea pill so hopefully she will be able to keep her pills down so...
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In addition to my earlier blog, Jen had a horrible day. She is still very weak, has pain from fibromyalgia, and has been throwing up all day. Her mother keeps calling me and talking nonsense; it is because they gave her the wrong medication, she takes too much medication, she doesn't take enough medication...I am on the edge already and I can't take much more...
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darrah_de_jour:
I agree with Kay!
kittykatznme:
Thanks for the advice, I sent you a friend request.
Physically, emotionally and financially bankrupt. Jen is still very weak, has stomach pains and some breathing difficulties. She was having breathing problems this morning, and one of the cats woke me up to let me know! Animal intuition is interesting. Still working two jobs, still doing laundry and dishes and everything else. 3 months without sex. I understand why, but it doesn't make it any...
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