Heyy I just got confirmation that I can continue with my treatment for week 1,2,3 and then every month, here's to hoping right?
Downfall is it increases the risks factors of things like Progressive multifocal leukoencephalopathy and that one thing there is bad especially since I have an autoimmune condition🙃
The worst thing is it mimics the same symptoms to what I get, but I think I'll know if I get it as I would suffer with things such as strokes, seizures and even coma/death. That's the one downfall to this.
But if it works I don't have to go to a hospital 3 towns over and stay for 6 hours on my own. I won't lie my anxiety is a mess, hell my mental health isn't one bit good and it took a hit from last year.
My mom died at 50 years old without a cause of death and idk maybe because she's the only one of my family I talked to I guess it's messed with my mindset a little, it even caused my initial treatment to fail due to the mindset being so bad. I was told to talk to someone but it's someone who gets paid to listen to others problems. Idk I know people have different opinions.
Anyways my coping mechanism was making others happy, it really helps. Which is why I produce and compose music, like I managed over 100 songs last year because of those late nights. But now I just hope I have a good mindset for this to work.
I will say this is the first place where I genuinely feel happy and safe expressing my problems etc. Surely that's a good thing right? 🖤
Ohh also I have relapsing remitting MS, but it's like a lot more progressed since I'm only 28, and ofc osteoporosis tends to come with it. I figure since I just keep saying condition or whatever maybe it was good to reference it. But honestly I don't ever expect sympathy, I just wanna make people smile 👻
VIEW 5 of 5 COMMENTS
rare:
I’m really glad to hear you can continue with your treatment. I know it comes with some heavy risks, but I’m hoping it works out and spares you those long hospital stays. It’s tough dealing with the anxiety and everything else on top, especially after what happened with your mom. That kind of loss is bound to weigh on your mindset, but it’s amazing you’ve channeled it into making music and helping others. It’s good that you feel safe expressing yourself here - everyone needs that. Keep creating and staying strong, and I’m rooting for you! 😊❤️
h3xl3a:
@rare Oh my gosh, I won't lie this has made my entire month! 🥺 And thank you so much, I won't lie I had a huge learning curve with the music but I think throughout last year that whole spending night after night trying and trying seems to have gotten me enough know how to be able to make magical things ❤️ And yeah for real like I'm so used to riding with the whole "I gotta deal with this myself so I'll stuff my feelings away." And honestly it was nice actually feeling like somewhere was actually safe to be open about that <3 I have my next treatment today as I keep getting text reminders 😫😅 But I promise I'll definitely stay optimistic and I don't want to give up anytime soon as I want to make as many people smile as possible and even if I can only do it via music, at least it's something right? 💙