In no particular order, my life over the past few weeks, captured with Instagram.
Stoya came to play D&D with us again. Izzy (http://www.athenelive.com/stream/221728/?apocalyptickitten) has been joining us via skype or G+ as well.
Kimberly Kane and Stoya after killing one of the giant skeleton ogres.
I'm still sickly. I get bored and take pictures of nothing while I'm in bed.
Like my grandmother's watch.
And how thin my skin is getting. (That's from the EDS.)
Just before sunset. Hollywood. Lemon trees and telephone wires.
My neighbour Angela's crazy living room wall decor.
It was my birthday. (Thank you all for the birthday wishes!)
We got my wheelchair working.
We went to the LA Times Festival of Books because ZakSmith's publisher was there and they wanted him to sign copies of his books. We ran into a fan who had a tattoo of one of Zak's drawings of me.
Mojito at Malo's. Yum.
My present from Zak.
It matches the ever-growing collection.
Birthday kisses from Charlotte Stokely. Will be working with her again soon!
Drunk Benny.
With Satine Pheonix, D23 and Kimberly Kane.
I dog sit for KK sometimes when she's on a long shoot.
Sleepy/sick face.
I love my bed. Which is good because I am forced to spend a lot of time in it.
Every day I am amazed and happy he is still alive.
My ass today.
I spend a lot of time with my xbox in Mass Effect 2 and 3-land.
But I am not online yet.
I had enough energy to bleach my hair the other day.
Kimberly Kane shows up at the oddest early morning hours (8am) and takes pictures of me.
I caught my heterochromia the other day. It's hard to get in a photo.
New jeans--second hand from Angela's new roommate Jaclyn.
Jaclyn also gave me this fantastic jacket! (KK took the photo.)
We go to the driving range. I watch the punks badly smack golf balls.
Angela, the roommate Nate Liquor, Kimberly Kane and ZakSmith way in the back.
ZakSmith's latest finished portrait. Of Charlotte Stockely.
Ta for now!
Oh!
And I found these great videos.
And overview.
An explanation of how disrupted autonomic processes like the cardiovascular system can affect sleep and pain issues and how to treat it.
A very good explanation of myofascial pain, the broader physical effect of the affected areas this doctor treats, in Ehlers-Danlos patients and how to deal with it in a physical therapy setting..
A very technical explanation of certain brain malformations that can occur in EDS patients but still understandable and helpful information. This related to certain kinds of base of skull and neck pain, as well as certain types of migraines and other problems expirenced by many EDS patients. When surgery is a good or bad idea and how to fix the issue.
Stoya came to play D&D with us again. Izzy (http://www.athenelive.com/stream/221728/?apocalyptickitten) has been joining us via skype or G+ as well.
Kimberly Kane and Stoya after killing one of the giant skeleton ogres.
I'm still sickly. I get bored and take pictures of nothing while I'm in bed.
Like my grandmother's watch.
And how thin my skin is getting. (That's from the EDS.)
Just before sunset. Hollywood. Lemon trees and telephone wires.
My neighbour Angela's crazy living room wall decor.
It was my birthday. (Thank you all for the birthday wishes!)
We got my wheelchair working.
We went to the LA Times Festival of Books because ZakSmith's publisher was there and they wanted him to sign copies of his books. We ran into a fan who had a tattoo of one of Zak's drawings of me.
Mojito at Malo's. Yum.
My present from Zak.
It matches the ever-growing collection.
Birthday kisses from Charlotte Stokely. Will be working with her again soon!
Drunk Benny.
With Satine Pheonix, D23 and Kimberly Kane.
I dog sit for KK sometimes when she's on a long shoot.
Sleepy/sick face.
I love my bed. Which is good because I am forced to spend a lot of time in it.
Every day I am amazed and happy he is still alive.
My ass today.
I spend a lot of time with my xbox in Mass Effect 2 and 3-land.
But I am not online yet.
I had enough energy to bleach my hair the other day.
Kimberly Kane shows up at the oddest early morning hours (8am) and takes pictures of me.
I caught my heterochromia the other day. It's hard to get in a photo.
New jeans--second hand from Angela's new roommate Jaclyn.
Jaclyn also gave me this fantastic jacket! (KK took the photo.)
We go to the driving range. I watch the punks badly smack golf balls.
Angela, the roommate Nate Liquor, Kimberly Kane and ZakSmith way in the back.
ZakSmith's latest finished portrait. Of Charlotte Stockely.
Ta for now!
Oh!
And I found these great videos.
And overview.
An explanation of how disrupted autonomic processes like the cardiovascular system can affect sleep and pain issues and how to treat it.
A very good explanation of myofascial pain, the broader physical effect of the affected areas this doctor treats, in Ehlers-Danlos patients and how to deal with it in a physical therapy setting..
A very technical explanation of certain brain malformations that can occur in EDS patients but still understandable and helpful information. This related to certain kinds of base of skull and neck pain, as well as certain types of migraines and other problems expirenced by many EDS patients. When surgery is a good or bad idea and how to fix the issue.
VIEW 25 of 67 COMMENTS
towritelove:
Hope you're still doing alright!
the_figurehead:
we miss those tits!