Ehlers Danlos and the SG Community

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So recently my friend and former SG Annisa was recently diagnosed with the same genetic syndrome I was DXed with nearly two years ago. Annisa has been struggling with her own degenerating health while still taking excellent care of her special needs daughter Julianna. Some of you may remember Annisa's posts about her difficult pregnancy and Julianna's own health issues. Annisa has however...
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legman:

aw!  I was wondering how Annisa was doing.

lior:

It sucks that she's been diagnosed with it too. I'm seeing a specialist this week because my doctor thinks I may have the hypermobility type, with possible vascular and/or classical cross overs. I'll try donate to the fundraiser you've posted once I see how much I get rebated on my doctors bills next week - I'll also share the link on my social media if that's ok?

Thursday

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macthecanonist:

@ADRIA Keep fighting, don't surrender, your strenght is admirable and is an example for others, I send you all my love and wishes for your healing

roger2013:

Hang in there Adria. My thoughts are with you and—when you do another fundraiser—I'd like to help. Love & hope... -R

Sex & Candy

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The comments on my new set are really amazing, they keep making me tear up. Thank you all very much. Some of you know things have gotten difficult for me so it's really lovely to see so many people being aware of that and so supportive!

<3

I am fundraising for my next round of more intensive Physical Therapy and a lot of new...
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dice:

You know this community has got your back. Much love sweetheart.

kingpuff:

missed helping on this fundraiser but i'll check back to see when i can help. but if there's anything you want for christmas let me know

I'm fund raising.

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http://www.youcaring.com/medical-fundraiser/get-mandy-physical-therapy-hip-braces/110938

Monday

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adria:

@jethro89 I'm Mandy, Jac is my friend. I don't know how badly her hands are affected but mine I have difficulty typing and using my phone and doing up buttons an things like that now. 

jionox:

you are Strong.. take care.

Monday Jul 08, 2013

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Finally getting sent for the MRIs to properly check my spine for some of the common problems that ocurre with Ehlers Danlos Syndrome! This is huge good news for me because I've had symptoms of a few nasty but correctable issues most of my life and they have gotten worse and would contribute to me being in the wheelchair.

Have I mentioned how much...
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wraithkiss:

I remember back when what you had was this big mystery and it hasn't really been all that long. With some more time and exposure to all this for your doctors I'm hoping you'll be able to turn the corner. 

draconiszeneca:

Don't you dare give up. No is only a word, and nothing can stop you but you.

Sunday Jun 16, 2013

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Thanks Dad for passing on your interest in sci-fi, comic books, reading in general and giving me all those books and art supplies and space and time to enjoy them on my own, Alice Cooper, my awesome nose and brains, and my complete lack of consideration for society in general's approval. Thanks for your endless encouragement and support. Thanks for never "babying" me and...
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kahkilla:

great pic!

wick_:

Your dad sounds just like my dad ♡ lucky girl 

Saturday Apr 27, 2013

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ron4164:

Zak's having a gallery showing. Nice. smile

lorensoth:

I do hope I will be able to attend :/

Wednesday Feb 06, 2013

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_tombstone_:

Happy Bday !

smythe:

Happy birthday, birthday twin. I hope you are feeling well.

Thursday Jan 10, 2013

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rubix:

my sympathies frown

corinna_:

cute n.n