Member: levicoda
hopeful

levicoda sick of the snow! want some sun!!

I’m private
 
JUNE 27, 2012 @ 02:25 AM


So pissed off today took my youngest son for his physiotherapy appt and was told he has floppy child syndrome. and that for now their is nothing they can do till he is older... I was told that when he goes to nursery the will pick up on what needs he has (which we already know!!) and he will then be refereed to an OT so for now i just have to wait and see the hole point was to have things in place before he went too nursery honestly i feel like screaming!!!!
Comments
Robinson_80

Robinson_80

I'm lost
July 2009

JUN 27, 2012 02:50 AM

thank you!!

Robinson_80

Robinson_80

I'm lost
July 2009

JUN 27, 2012 03:13 AM

hope things sort out for you and family... sound fucking unhelpful

Littlejohn22

Littlejohn22

Fredericton, NB
May 2009

JUN 27, 2012 04:06 AM

That sounds like a brush off... Sorry this happened...

guitar47

guitar47

United Kingdom
September 2007

JUN 27, 2012 06:08 AM

As someone with cerebral palsy all I can say is that you have to hammer on the door pretty much none stop and don't take no for an answer it might be different in scotland but the nhs is painfully slow in england . I'm 24 now and looking for a job hope things get sorted soon x

ronniekitty

ronniekitty

Oshawa, ON
June 2012

JUN 27, 2012 07:53 AM

Scream away, you'll feel better.
i truly hope you can fight through the bureaucratic bullshit.
love kiss

levicoda

levicoda

HOPEFUL

United Kingdom

JUN 27, 2012 08:49 AM

I was proactive today spoke with the deputy head of school/nursery and i am too meet with her in aug and she is going to do the referral for him then instead of waiting till jan so i am happier now. no advocates are only used when their is no legal guardian here frown. The deputy head was very nice and thanked me for bringing it to her attention she is going to be telling a white lie in aug as she will have to say he is already at nursery but because their is a 6 month waiting list she wants to do it early and she ill get him accessed by the school OT we are lucky that their is a special needs school attached to were rogue goes so she reassured me that they were equipped to dealing with a child who has special needs.xx

guitar47

guitar47

United Kingdom
September 2007

JUN 27, 2012 09:01 AM

can i add you to msn if thats ok of course just a bit easier to type on there x

guitar47

guitar47

United Kingdom
September 2007

JUN 27, 2012 09:50 AM

added you on face book

ronniekitty

ronniekitty

Oshawa, ON
June 2012

JUN 27, 2012 10:05 AM

i'm so glad it worked out. very nice of the deputy head to help you.

Thanks for the hair color advice. i love your hair so i will definitely search out the crazy color products.

Love you
love kiss

KashaLee

KashaLee

Brazil
July 2009

JUN 28, 2012 06:36 AM

smile

Andy__

Andy__

United Kingdom
August 2011

JUN 28, 2012 09:02 AM

I hope it all works out for you x

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