PICS
FML! So I just got back from seeing and meeting my new neurologist. He seems like a drug pusher. He didn't ask me my symptoms per se just what drugs I had taken. So he told me that he wants to test me for the JC virus. If I am negative again then he wants to continue with the Tysabri treatment. He said that the 3-4 year mark is when the people develop PML. Well that is exactly where I am at. He says that people who have been on it have a 10 in 1000 chance of developing PML buuuuuut people who did chemotherapy have a 1 in a 100 chance. 
Well I did do chemotherapy for almost two years. 
I am so fucking pissed right now. If I had a gun I would go to the shooting range and shoot stuff. I am finally getting a new life. I cannot move in with my boyfriend and have to go off the Tysabri and then have my MS come back. Tysabri has a 70% chance of stopping relapses while Copaxone (one of the daily injections I used to do) has a 30% chance. He said in MARCH they are coming out with a new oral drug. FUCKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKK
so he pretty much wants me to stay on the tysabri. I do not want to. I do not want to develop PML.
I found out what happened with my neurologists. The MS clinic I went to got bought out and all the doctors are leaving. So he said 3000 people that went there now have to find new neurologists. They all left because their income was lowered.
I cried a little driving home from the doctor.
I finally came to the conclusion why I never tried to have relationships or anything. I just will lose it all again. It was hard enough the first time to lose EVERY GODDAMN THING in my life.
I seriously need a good fuck or something.
I need a cigarette.
I think I'm going to buy some.
Bites and licks,
Bitten the pissed
Well I did do chemotherapy for almost two years. I am so fucking pissed right now. If I had a gun I would go to the shooting range and shoot stuff. I am finally getting a new life. I cannot move in with my boyfriend and have to go off the Tysabri and then have my MS come back. Tysabri has a 70% chance of stopping relapses while Copaxone (one of the daily injections I used to do) has a 30% chance. He said in MARCH they are coming out with a new oral drug. FUCKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKKso he pretty much wants me to stay on the tysabri. I do not want to. I do not want to develop PML.
I found out what happened with my neurologists. The MS clinic I went to got bought out and all the doctors are leaving. So he said 3000 people that went there now have to find new neurologists.
They all left because their income was lowered. I cried a little driving home from the doctor.
I finally came to the conclusion why I never tried to have relationships or anything. I just will lose it all again. It was hard enough the first time to lose EVERY GODDAMN THING in my life.
I seriously need a good fuck or something.
I need a cigarette.
I think I'm going to buy some.
Bites and licks,
Bitten the pissed
DEC 10, 2012 02:53 PM
DEC 10, 2012 02:56 PM
DEC 10, 2012 03:12 PM
I'm sorry sweetheart! I know how frustrating it can be having a chronic condition and dealing with asshole doctors who won't listen to you. I hope everything works out. Keep me posted, ok? 
DEC 10, 2012 03:29 PM
DEC 10, 2012 03:58 PM
DEC 10, 2012 05:20 PM
DEC 10, 2012 05:53 PM
DEC 10, 2012 06:14 PM
DEC 10, 2012 06:16 PM
DEC 10, 2012 07:38 PM
DEC 10, 2012 07:39 PM
DEC 10, 2012 07:56 PM
DEC 10, 2012 08:12 PM
DEC 10, 2012 08:23 PM
The woes of modern medicine.
Too many pills and whatever, and way too many opinions. Gah!
Hope you are ok Bitten. Take care my friend. 
DEC 10, 2012 08:26 PM
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