SuicideGirl: Adria
suicidegirl

Adria Built to fuck but with Classic & Hypermobile Type Ehlers Danlos Syndrome

I’m private
 
SEPTEMBER 26, 2012 @ 02:42 PM



Izzy/Kitten and I made a vlog about what it was like getting diagnosed with a poorly understood genetic condition.
The links to all of Izzy's online stuff are posted at the end of the video--yes I know she is adorable. And yes my eyebrows are crazy. It was very very hot that day you can see me turn pinker and pinker. blush

Previous

PAGE: 

1 | 2

Next

Comments
Amico

Amico

I'm lost
June 2008

SEP 26, 2012 02:56 PM

The last time someone turned too pink this happened....


...and that turned out ok so don't worry XD!!

Makes me happy that you and Kitten are speaking out about being diagnosed with a poorly understood medical condition.....I went through something along those lines and it took 'em 20 damn years to finally figure out what to make of me but all is as good as it can be now....not perfect but ok enough for me to live and I wish you and Kitten good too!!

Liu

Liu

SUICIDEGIRL

I'm lost

SEP 26, 2012 05:46 PM

She is adorable so do you, love you pinkie <3

f1ssure

f1ssure

Cranford, NJ
February 2006

SEP 26, 2012 05:48 PM

Thank you both for making that vlog. It was cute and informative. And had a dog!!! Everything is better with a dog smile

DrHamburger

DrHamburger

Rochester, NY
October 2004

SEP 26, 2012 07:24 PM

My heart breaks for both of you and what you've been through. I can't imagine how scary it must have been to experience all these symptoms and have a doctor not have an answer or a wrong answer for you. I'm also so impressed with both of you to make this video and share all that difficult stuff. I really admire your strength and desire to help other people. Thank you for being so inspiring. Wishing you all the best.

bendingunit23

bendingunit23

Canada
April 2005

SEP 26, 2012 07:31 PM

Great job with the video Adria, I hope it helps lots of people understand their problems and know they're not alone.

I thought Zak's arm was going to make a cameo in it.

johnnydiscard

johnnydiscard

Goleta, CA
June 2011

SEP 26, 2012 08:18 PM

And here I thought the internet was only good for porn and shopping wink

It really is amazing how people can see something a million miles away and say, "I think you have this very rare thing that I also do."

_Smurfzilla_

_Smurfzilla_

USA
October 2009

SEP 26, 2012 08:59 PM

im glad youve finally got a good diagnosis. Good luck to both you and your friend. EDS sounds terrifying from stuff ive read on it.

ostrich

ostrich

Cape Coral, FL
February 2008

SEP 26, 2012 10:47 PM

Holy crap that was interesting. I've read about EDS but you guys put it in terms that really give a solid impression of what it is like day to day from your perspective. Thanks for posting this. To think I wouldn't even have been paying attention if I weren't reading some hot girl's blog...the magic of SG, huh?

Littlejohn22

Littlejohn22

Fredericton, NB
May 2009

SEP 27, 2012 02:45 AM

you do cope well it seems... better then i would

legman

legman

Portland, OR
February 2006

SEP 27, 2012 03:37 AM

kiss
that was interesting!biggrin

Ositobonbon

Ositobonbon

El Paso, TX
June 2012

SEP 27, 2012 02:17 PM

I'm sorry for everything that you're going through and am glad that you found someone that shares your frustrations. It was awesome to hear your voice. I imagined it much raspier for some reason.

Expo

Expo

United Kingdom
July 2008

SEP 27, 2012 04:23 PM

Hmm i think i have a form of this too, ive had it for 4 years, no one knows what it is

RollnRob

RollnRob

Canandaigua, NY
April 2008

SEP 27, 2012 05:28 PM

❤ ❤ ❤

forevershadow

forevershadow

USA
April 2011

SEP 27, 2012 07:45 PM

I have someone close to me that has something like this but after listening to you both its possible she might have it too.

Ositobonbon

Ositobonbon

El Paso, TX
June 2012

SEP 27, 2012 08:40 PM

I think I have it also.

PreviousNext
Past
SEPTEMBER 2012

1

2

3

4

5

6

7

8

9

10

11

12

13

14

15

16

17

18

19

20

21

22

23

24

25

26

27

28

29

30

AUGUST 2012

1

2

3

4

5

6

7

8

9

10

11

12

13

14

15

16

17

18

19

20

21

22

23

24

25

26

27

28

29

30

31

JULY 2012

1

2

3

4

5

6

7

8

9

10

11

12

13

14

15

16

17

18

19

20

21

22

23

24

25

26

27

28

29

30

31

JUNE 2012

1

2

3

4

5

6

7

8

9

10

11

12

13

14

15

16

17

18

19

20

21

22

23

24

25

26

27

28

29

30