SuicideGirl: Adria
suicidegirl

Adria Built to fuck but with Classic & Hypermobile Type Ehlers Danlos Syndrome

I’m private
 
APRIL 30, 2012 @ 03:28 PM


In no particular order, my life over the past few weeks, captured with Instagram.






Stoya came to play D&D with us again. Izzy (http://www.athenelive.com/stream/221728/?apocalyptickitten) has been joining us via skype or G+ as well.



Kimberly Kane and Stoya after killing one of the giant skeleton ogres.


I'm still sickly. I get bored and take pictures of nothing while I'm in bed.

Like my grandmother's watch.



And how thin my skin is getting. (That's from the EDS.)


Just before sunset. Hollywood. Lemon trees and telephone wires.


My neighbour Angela's crazy living room wall decor.



It was my birthday. (Thank you all for the birthday wishes!)
We got my wheelchair working.

We went to the LA Times Festival of Books because ZakSmith's publisher was there and they wanted him to sign copies of his books. We ran into a fan who had a tattoo of one of Zak's drawings of me.


Mojito at Malo's. Yum.


My present from Zak.
It matches the ever-growing collection.


Birthday kisses from Charlotte Stokely. Will be working with her again soon!


Drunk Benny.

With Satine Pheonix, D23 and Kimberly Kane.


I dog sit for KK sometimes when she's on a long shoot.


Sleepy/sick face.

I love my bed. Which is good because I am forced to spend a lot of time in it.








Every day I am amazed and happy he is still alive.









My ass today.

I spend a lot of time with my xbox in Mass Effect 2 and 3-land.




But I am not online yet.

I had enough energy to bleach my hair the other day.



Kimberly Kane shows up at the oddest early morning hours (8am) and takes pictures of me.













I caught my heterochromia the other day. It's hard to get in a photo.



New jeans--second hand from Angela's new roommate Jaclyn.




Jaclyn also gave me this fantastic jacket! (KK took the photo.)




We go to the driving range. I watch the punks badly smack golf balls.


Angela, the roommate Nate Liquor, Kimberly Kane and ZakSmith way in the back.

ZakSmith's latest finished portrait. Of Charlotte Stockely.


Ta for now!


Oh!
And I found these great videos.
And overview.
An explanation of how disrupted autonomic processes like the cardiovascular system can affect sleep and pain issues and how to treat it.
A very good explanation of myofascial pain, the broader physical effect of the affected areas this doctor treats, in Ehlers-Danlos patients and how to deal with it in a physical therapy setting..

A very technical explanation of certain brain malformations that can occur in EDS patients but still understandable and helpful information. This related to certain kinds of base of skull and neck pain, as well as certain types of migraines and other problems expirenced by many EDS patients. When surgery is a good or bad idea and how to fix the issue.

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Comments
SpanishBoi

SpanishBoi

USA
March 2011

APR 30, 2012 11:27 PM

Looks amazing! Hope you get well soon! Do you play SWTOR?!

Albertine

Albertine

SUICIDEGIRL

Italy

APR 30, 2012 11:40 PM

kisses from italy land!

rebelstarfighter

rebelstarfighter

Hungary
February 2012

MAY 01, 2012 12:13 AM

Happy Belated Birthday! Really like the pictures, D&D sounds fun. I have very worn pair of pink converse exactly like yours. Only pair of shoes i've ever found in a free bin that fits my silly large feet.

Denie

Denie

SUICIDEGIRL

I'm lost

MAY 01, 2012 12:39 AM

ha! love your panda tshirt.
kiss

baudot

baudot

Oakland, CA
February 2004

MAY 01, 2012 01:37 AM

When you get on the Xbox Live network, I'm "chepenoyo" there.

Littlejohn22

Littlejohn22

Fredericton, NB
May 2009

MAY 01, 2012 02:57 AM

doing my hair right now too... looks great so far... have a great week

RollnRob

RollnRob

Canandaigua, NY
April 2008

MAY 01, 2012 04:00 AM

sending you love and positive energy on a daily basis ♥ ♥ your so beautiful love kiss biggrin kiss love
keep on rolln' ♥ ♥

Lorrean

Lorrean

New Zealand
April 2012

MAY 01, 2012 07:53 AM

Had a big laugh on the Skyrim Badass video... Awesome!!! biggrin

abigbat

abigbat

United Kingdom
October 2010

MAY 01, 2012 09:18 AM

Amazing photos! Love the variety; I get to play D&D and other board games at work for design meetings, it's hilariously geeky. Ace that you got the chair working, I know from very close friends how much of a nightmare that can be.

How did you find Mass Effect 3? I really enjoyed it, although I have no real desire to go back and play the series now strangely (possibly because I'm so busy at the moment).

I'll need to remember to add you on instagram when I dig my phone out <3

norritt

norritt

Mesa, AZ
December 2002

MAY 01, 2012 10:23 AM

sounds like a fun d&d session
you could cosplay as professor x!

inspire504

inspire504

New Orleans, LA
February 2012

MAY 01, 2012 12:21 PM

Built for whom? Or are you taking applications? I am very qualified...

tigereyes

tigereyes

Australia
December 2005

MAY 01, 2012 06:57 PM

cool pics

cyclmn

cyclmn

Sacramento, CA
December 2007

MAY 01, 2012 07:12 PM

loveloveGreat picslovelove

softnsweet

softnsweet

I'm lost
June 2003

MAY 01, 2012 09:53 PM

wow, great pics you look beautiful and have a great bod. hope your illness is stabilized and you can enjoy life.

formerviking

formerviking

Denver, PA
May 2006

MAY 01, 2012 10:02 PM

Sorry to hear you're not feeling well . I hope things work out for you . And I wish I could sit in on one of your D&D sessions . I bet they're a blast .

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