SuicideGirl: Adria
suicidegirl

Adria Built to fuck but with Classic & Hypermobile Type Ehlers Danlos Syndrome

I’m private
 
APRIL 30, 2012 @ 03:28 PM


In no particular order, my life over the past few weeks, captured with Instagram.






Stoya came to play D&D with us again. Izzy (http://www.athenelive.com/stream/221728/?apocalyptickitten) has been joining us via skype or G+ as well.



Kimberly Kane and Stoya after killing one of the giant skeleton ogres.


I'm still sickly. I get bored and take pictures of nothing while I'm in bed.

Like my grandmother's watch.



And how thin my skin is getting. (That's from the EDS.)


Just before sunset. Hollywood. Lemon trees and telephone wires.


My neighbour Angela's crazy living room wall decor.



It was my birthday. (Thank you all for the birthday wishes!)
We got my wheelchair working.

We went to the LA Times Festival of Books because ZakSmith's publisher was there and they wanted him to sign copies of his books. We ran into a fan who had a tattoo of one of Zak's drawings of me.


Mojito at Malo's. Yum.


My present from Zak.
It matches the ever-growing collection.


Birthday kisses from Charlotte Stokely. Will be working with her again soon!


Drunk Benny.

With Satine Pheonix, D23 and Kimberly Kane.


I dog sit for KK sometimes when she's on a long shoot.


Sleepy/sick face.

I love my bed. Which is good because I am forced to spend a lot of time in it.








Every day I am amazed and happy he is still alive.









My ass today.

I spend a lot of time with my xbox in Mass Effect 2 and 3-land.




But I am not online yet.

I had enough energy to bleach my hair the other day.



Kimberly Kane shows up at the oddest early morning hours (8am) and takes pictures of me.













I caught my heterochromia the other day. It's hard to get in a photo.



New jeans--second hand from Angela's new roommate Jaclyn.




Jaclyn also gave me this fantastic jacket! (KK took the photo.)




We go to the driving range. I watch the punks badly smack golf balls.


Angela, the roommate Nate Liquor, Kimberly Kane and ZakSmith way in the back.

ZakSmith's latest finished portrait. Of Charlotte Stockely.


Ta for now!


Oh!
And I found these great videos.
And overview.
An explanation of how disrupted autonomic processes like the cardiovascular system can affect sleep and pain issues and how to treat it.
A very good explanation of myofascial pain, the broader physical effect of the affected areas this doctor treats, in Ehlers-Danlos patients and how to deal with it in a physical therapy setting..

A very technical explanation of certain brain malformations that can occur in EDS patients but still understandable and helpful information. This related to certain kinds of base of skull and neck pain, as well as certain types of migraines and other problems expirenced by many EDS patients. When surgery is a good or bad idea and how to fix the issue.

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Comments
Vanhij

Vanhij

USA
July 2011

APR 30, 2012 03:42 PM

Great fun. Love the star wars battle scene on the ceiling. biggrin

Talena

Talena

SUICIDEGIRL

Chile

APR 30, 2012 03:49 PM

I love you!!!!!lovelovelovelovelovelove

Punkerbell

Punkerbell

Ladera Ranch, CA
January 2012

APR 30, 2012 04:06 PM

You're beautiful doll!

Kelpie_

Kelpie_

HOPEFUL

Ellensburg, WA

APR 30, 2012 04:40 PM

oh lovely, I wish I could come cuddle and play D&D... I have noone to play with frown Was doing a campaign of Vampyres with friends but after one night the DM said he gave up, so we sadly dispersed. I am glad to see you are doing okay, hope you heal soon and that we can enjoy more of you around the site! xxoo

DarkRiver

DarkRiver

Gurnee, IL
April 2006

APR 30, 2012 05:30 PM

I'll never get tired of seeing photo's of you love

Brooklyn

Brooklyn

SUICIDEGIRL

New York, USA

APR 30, 2012 05:51 PM

I can't wait to meet you in person in June! Super excited. LOVE the purple mohawk...

random_noise

random_noise

Canada
November 2008

APR 30, 2012 06:42 PM

Belated Happy Birthday!

Anjave

Anjave

Australia
May 2007

APR 30, 2012 06:42 PM

Star Wars, had myself a Darth Vader mask in 1979, if only I could take it off.smile

bendingunit23

bendingunit23

Canada
April 2005

APR 30, 2012 08:08 PM

Hey lots of great pictures update. Good to see you found more jeans you like. looks like you had a fun birthday.

hornyarm

hornyarm

Canada
January 2012

APR 30, 2012 08:12 PM

nice

Terrox

Terrox

SUICIDEGIRL

I'm lost

APR 30, 2012 08:23 PM

I need you panda T-Shirt and I want to see you with your blue hair, or that`s not blue hair dye?
I had a friend and she has a boyfriend that is like your fan (you as Mandy Morbid).
Kisses kiss

Steam_

Steam_

HOPEFUL

USA

APR 30, 2012 08:35 PM

I love the picture of you lying across everybody.
I imagine your bed is pretty epic and full of hidden treasures as you spend a good amount of time in it.
And that wall decor appeals to me somehow.
xo

alchemy333

alchemy333

Australia
June 2009

APR 30, 2012 08:36 PM

You're gorgeous miss. I hope you're on the mend soon.

ron4164

ron4164

Ponchatoula, LA
January 2007

APR 30, 2012 10:02 PM

love love
So nice to see a lot of friends hanging out with you.
The chair looks nice! smile
Hope everything is gong well Adria. kiss kiss

J24U

J24U

Danvers, MA
February 2006

APR 30, 2012 10:47 PM

If there is one thing that could lift my spirits on even the worst of days, it would be Mordin singing "I am the very image of a scientist salarian" from Mass effect 2. Pure geek nirvana.

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